For years, I dreamed of saying the words: “I live on my own.”
Now, five years later, I can proudly say that I do—and for the most part, I couldn’t be happier.
Independence with cerebral palsy is not easy, but it is possible, with a team behind you helping and cheering you on.
Like any adult, I have bills to pay, housework to do, and never enough money or time. But with a disability, those responsibilities multiply.
For me, “keeping my cerebral palsy in check” is part of daily life. That means:
- Managing stress so it doesn’t physically overwhelm me and knock me down.
- Watching my diet and health so I can stay strong and independent.
- Reminding myself to be consistent, because slipping backward is always a risk.
One of my most significant responsibilities is supervising my PCAs (personal care assistants).
On one hand, I’m proud of this role. Not every person with a disability gets to manage their own care, and having that control is empowering.
On the other hand, it can be stressful. Picking a PCA is never easy. I find myself asking:
- Are they the right fit for me?
- Can I trust them?
- Did I make the right choice?
What I’ve learned is this: you have to be true to yourself. If you’re not honest about your needs, the arrangement simply won’t work.
Yes, living independently with cerebral palsy—or any disability—comes with challenges. But it also comes with pride, growth, and freedom.
The best advice I can give is this:
👉 Be yourself.
👉 Choose people who support your independence.
👉 Always put your safety and well-being first.
Because independence is not just possible—it’s worth it.
