Disability

EVERYDAY

Every day they spend together is a day they Cherish

Cherishing the time they spent together was all they wanted 

They remember the days when they wasted time not spending time 

Time was the one thing they couldn’t get back

If time could only go backward, they would have more time to cherish each other.

Every day is a beautiful journey together. 

The beautiful journey starts by waking up in each other’s arms

Every day is beautiful, and the times they cherish with each other bring smiles to them that they always have waited for.

Their smiles would light up the night

The night was packed with their love for each other 

Every day they spend together is a day they Cherish

Cherishing the time they spent together was all they wanted 

They remember the days when they wasted time not spending time 

Time was the one thing they couldn’t get back

If time could only go backward, they would have more time to cherish each other.

Every day, there is a new chapter in their story.

Their story started long before they became one.

When their eyes met for the first time, they knew.

Their hearts felt the connection before they knew what was happening.

The connection just kept getting stronger.

Every day they spend together is a day they Cherish

Cherishing the time they spent together was all they wanted 

They remember the days when they wasted time not spending time 

Time was the one thing they couldn’t get back

If time could only go backward, they would have more time to cherish each other.

AWARENESS, CEREBRAL PALSY, CHALLRNGES, DISABILIATIES, Disability, EMPOWER, HEALTH, LIVING MY BEST LIFE, PHYSICAL DISABITY, SELF-AWEARNESS

FORGIVENESS

Everyone says I have a fantastic story to share about life. When people say I say it’s just what I was given, I had to make the best of the life I was given. However, I want to tell my story, but I have a lot more to learn about life and about myself. During the Pandemic, I started the journey because I was forced to be locked in my apartment. I moved out of my family’s home for the first time and it was six months into a 4-year Pandemic. I could only visit with a small pod of people for the first year and a half, leaving plenty of time for me to become best friends with my computer.

My computer became the best friend I needed, and it didn’t judge me. I would sit at the computer most of the day and write what was on my mind and in my heart. Some of the stuff I would write about was hard to face, while others were fun to remember. The writing was therapeutic for me. I learned to talk about my challenges, even if I was just just talking to my computer.

While talking to the computer, I was able to put different parts of my life into perspective. I saw that being afraid of who I was hindering myself from reaching my full potential. 

A lot of people would expect my life to get harder during the pandemic with such limited help, but instead, it opened me up in many ways, even though I was shut inside. Even though the Pandemic made my challenges even more difficult, it didn’t make them any less beautiful.

Challenges can be beautiful in many ways. It can be hard to see how beautiful challenges can be if you are the one with said challenges. For example, I was living on my own for the first time, and I was managing my own place by myself. Even though I had limited help, I had unlimited creativity. I was able to make my apartment my own style. I could plan my own meals and cook them in my own pots and pans, and do my own laundry. It was challenging, but I grew to love who I was and what I could become.

For the first time in my life, I was able to fall in love the right way by getting closer with a good friend of mine. I used my computer for this, too. This is just one of many ways my computer helped me. I was able to use it to travel all around the world. I got to know what the pandemic was like in different countries.

The challenge of the pandemic was made beautiful by giving me a new way to explore the world online. My world became so much more than I ever thought I could have. While learning about my beautiful challenges during the pandemic, I also saw how to forgive myself. Even though I never showed it, I held it in my mind that my disability would stop me from having the life that I wanted.

During this whole journey, I learned that whether you are born with a disability or acquire one in life, challenges are beautiful. Once I saw myself, I took a turn in life, making me accept who I was. I know how difficult it could be looking past our negativity, but there comes a time when we must look beyond what we see in ourselves, and what other people see in us. Every obstacle we overcome has a purpose and a meaning.

When overcoming a struggle, I don’t see it as anything significant. I just see it as part of life. Whether you were born with a disability or acquired one in life, believe it or not, our challenges are beautiful. It took me a long time to see that in myself. Once I saw that in myself, I took a turn in life, making me accept who I am. I know how difficult it can be to look past our negativity, but there comes a time when we have to start looking beyond what we see in ourselves and what people see in us. Every obstacle we overcome has a purpose and meaning. When overcoming a struggle, I don’t see it as anything significant; I just see it as a part of life. As a kid, I used to fall, then just get up and move on like nothing happened. People used to ask me how I could do that; I would just say it’s a part of life. It’s not that I don’t see my challenges or seek help for them; I just try not to let them get to me. If I try not to let my difficulties get to me, then when people meet and get to know me, they don’t see my disability. They see the person I am, and isn’t that what you want people to see in the long run?

Challenge means: A call to participate in a contest or a competition, especially a duel. When I look at this definition, I think about what I was like in the past. I thought I was competing with my peers.  I realized I wasn’t competing with my peers. I was competing with my disability. By competing with myself, I lost more time than if I just went with the flow and my challenges.  Yet, I would not change a thing.  Whether they were the challenges I was born with or the challenges I added to life, they made me who I am.  

Results may vary based on the life you’re living. Your challenges won’t be identical to mine, but there are ways to make them beautiful. I invite you to look at ways to broaden your horizon even if you don’t or can’t leave the comfort of your own home.

AWARENESS, CEREBRAL PALSY, CHALLRNGES, DISABILIATIES, Disability, EMPOWER, HEALTH, MENTOR

THE BEAUTY BETWEEN OUR CHALLENGS

WELCOME TO “OUR BEAUTIFUL CHALLENGES.” WHETHER WE HAVE OUR DISABILITY FROM BIRTH OR ACQUIRED IN LIFE, THERE IS BEAUTY IN OUR CHALLENGES. WE HAVE TO FIND THEM WITHIN OURSELVES 

Whether you were born with a disability or acquired one in life, believe it or not, our challenges are beautiful. It took me a long time to see that in myself. Once I saw that in myself, I took a turn in life, making me accept who I am. I know how difficult it can be to look past our negativity, but there comes a time when we must start looking beyond what we see in ourselves and what people see in us. Every obstacle we overcome has a purpose and meaning. When overcoming a struggle, I don’t see it as anything significant; I just see it as a part of life. As a kid, I used to fall, just get up and move on like nothing happened. People used to ask me how I could do that; I would just say it’s a part of life. It’s not that I don’t see my challenges or seek help for them; I just try not to let them get to me. If I try not to let my difficulties get to me, then when people meet and get to know me, they don’t see my disability. They see the person I am, and isn’t that what you want people to see in the long run?

Challenges mean -A call to participate in a contest or a competition, especially a duel. When I look at this definition, I think about what I was like in the past. I thought I was competing with my peers.  I realized I wasn’t competing with my peers. I was competing with my disability. By competing with myself, I lost more time than if I just went with the flow and my challenges.  Yet, I would not change a thing.  Whether they were the challenges I was born with or the challenges I added to life, they made me who I am. 

Disability

WHAT IS INTERAL ABLEISM?

Now that I have discovered what ableism is and how it relates to my life, let us break down what internal ableism is. A  person consciously or unconsciously believes in harmful messages they heard about their disability and applies themself.

I can think of internal ableism in two ways. Internal ableism is what people have put upon you,  saying you can’t do this or that in life and questioning if you can do something. Then there is the internal ableism you place upon yourself about what you think about the community you belong to.

First, let’s take the internal ableism that people place upon you. My PCA said I was slacking off on my activities and more tired. Then she asked if I could live on my own. When she said this, it upset me. I didn’t want to tell her at the time, but I felt she was ableislizing me and making me think that I wasn’t capable when I had been living on my own for almost three years and the first year and a half was all on my own because of the pandemic. 

She watched videos of others with CP and felt like I was not as independent or pushing myself as much as they were. It is hard for anyone to understand that no CPs are alike and that everyone with CP has their limits and internal ways of pushing themselves. 

I have been fighting this all my life. For many years, I have internalized these assumptions put upon me about having a disability and cerebral palsy.

At this point in my life, I shouldn’t feel this way or let other people make me feel this way.

Now, to the internal ableism that I placed upon myself.

For many years, I was scared of my disability and socializing with anyone in the cerebral palsy community. If I associated with others in the cerebral palsy community, I might not have internalized my fear of the cerebral palsy community as much as I did.

When I was very young and going for physical therapy at the rehab center, feeling if I went near others with more involved CP than I had, I would somehow catch their CP. Growing up, I had a group of friends with disabilities, and I was okay with them.  

As I got older, the internal ableism about myself and CP only grew more aggressive. I was in college, and others with CP would come up to me and want to be friends or ask me on a date; however, I would just run the other way, not wanting to have anything to day with another person with CP. I would make every excuse to say I didn’t want to get to know the person. When the truth was, I wasn’t comfortable with who I was, a person with a disability.

The way I felt about myself and my disability was just getting worse over time. Family and friends would say I should change my outlook on my disability, or else I  would not get anywhere. 

It wasn’t until I got hit with an unwanted disability. At 35, I ended up with PsA (Psoratic Arthritis). When you are born with a disability such as CP, you hope you don’t have any more challenges with your health, but unfortunately, when you have one disability, it doesn’t stop you from getting other health issues. When I developed PsA, I wasn’t sure where my life was going.  

One night,  I was at a fork in the road; if I didn’t pick up my life, I would not return from a dark place.  Looking at my two disabilities now, I needed to accept one. I knew the PsA would go away at some point, but the CP was, is, and will always be a part of me. That night, I began my journey to discovering who I was with CP. 

After many years of internal ableism, my disability I taught myself that just because my disability makes me seen as different, my disability and what people say or think about me shouldn’t stop me from being who I need and want to be.