Disability

WHEN ACCEPTANCE BECOMES THE WIN

As the year comes to an end, I find myself looking back—not just at what I’ve done, but at what I’ve learned. One lesson stands out above the rest: the hardest part of any challenge isn’t overcoming it. It’s accepting it.

When I was younger, I didn’t understand that. I saw challenges as roadblocks—temporary interruptions I just needed to push past. I couldn’t yet see the bigger picture. I didn’t know that some challenges don’t disappear; instead, they ask us to grow around them.

This year also reminded me of something else: dreams do come true. Just not always in the way we imagine. Sometimes they arrive reshaped by reality, surprising us with precisely what we were looking for all along.

I probably began learning these lessons five years ago, when I moved out on my own. That was when I discovered an independence I had always dreamed of but never fully believed was possible for me. Living on my own opened a door to a life I hadn’t let myself imagine before. Still, even then, something felt unfinished—like I was standing in the doorway but hadn’t fully stepped inside.

Part of my dream was always simple: to spend my life with someone who felt natural. For many years, I tried to force connections before I was ready, before I truly understood myself. It wasn’t until I accepted who I was—my needs, my limitations, and my strengths—that love arrived in the way it was meant to.

Two years after moving out on my own, I fell in love with a friend who had quietly been a dream of mine for years. We’ve now been together for four years, building a life grounded in understanding, patience, and care.

As much as we would love to live together, share a mailbox, and get married, we can’t—because the systems meant to support us would take so much away if we did. That truth still hurts. But instead of letting it stop us, we found a way to make our lives work. He lives in the apartment next to mine. It may not match the picture I once held in my mind, but it is honest, loving, and ours.

This is where Our Beautiful Challenges comes in—the fictional organization at the heart of my stories, shaped by the way I’ve learned to live. In that world, challenges don’t need to be erased to have value. They can be adapted to. They can be carried. And sometimes, they become the very thing that teaches us how to live fully.

When telling this story feels too hard, I let Josephine speak for me. Through her, I explore the complicated and tender parts of life—the spaces that don’t fit neatly into expectations. Josephine reminds me that there is beauty in the in-between, in lives that don’t follow traditional paths but are rich all the same.

What this year has taught me is that I don’t have to fight my challenges anymore. I can work with them. Shape my life around them. Let them guide me instead of define me.

It has taken me almost fifty years to understand this, but I can finally say it with peace in my heart:
I have everything I want.

Disability

AN UNEXPECTED LIFE: BECOMMING THE WOMEN I WAS NEVER EXPECTED TO BE

There are stories we are handed at birth, and then there are stories we write ourselves.
This is mine.


The First 48 Hours

As someone with a disability, my life began with doubt.
People told my parents I would never amount to anything.
Some said I might not make it past the first forty-eight hours.

Those words were meant to be limits.
But instead, they became fuel.

I didn’t just make it past those first hours—
I made it into days, into years, and into a life no one expected.
I learned early that survival wasn’t guaranteed,
but fighting for myself would always be part of my story.


Learning to Live, Not Just Survive

There were many moments when I didn’t think I would make it.
Times when the world felt heavy and lonely.
Seasons when I convinced myself that love, marriage, and partnership weren’t meant for people like me.

I told myself I didn’t want those things—
but deep down, I did.
I wanted the kind of life I saw everyone else living so easily.

Because of that longing, I began to rush life.
I tried to force things that weren’t ready.
I pushed myself forward without taking time to breathe or grow.
I didn’t give life a chance to meet me halfway.

But everything changed when I finally slowed down.
When I stopped chasing and allowed life to unfold naturally.
In that stillness, I stumbled into something unexpected—
something softer, steadier, and more beautiful than anything I had tried to force.

I stumbled into my life.


The Life I Never Expected

Today, I live the kind of life I once believed was impossible.

I have my own home—
not alone, but independently supported by family, friends, and a few amazing PCAs who help with my day-to-day needs.
I built a life that works for who I am and what I need.

And then, the most unexpected part of all:
I found my person.

Someone I can call mine.
Someone who loves me as I am,
who understands my challenges without me needing to explain,
who doesn’t see my disability as a barrier to love.

We dream of living together.
We dream of marriage.
We dream of a shared life.

But government assistance makes those dreams harder for people like us.
Love comes easily—
the system does not.

Still, like everything else in my life, I adapt.
I adjust.
I figure things out.

Because I’ve always been a square peg in a round hole.
And when something doesn’t work for me,
I make it work.

It’s how I survived.
It’s how I grew.
It’s how I became the woman I am today.


What My Life Feels Like Now

Some days feel like sunrise—
a soft, warm light touching places I once believed were out of reach.

Some days feel like walking a new path,
one that no one else has walked,
leaving footprints that whisper,
“Yes. A life like this is possible.”

And some days feel like holding the hand of someone who chose me,
realizing love didn’t skip over my life—
it simply took its time.


Becoming More Than Expected

I wasn’t supposed to make it past 48 hours.
Yet here I am—
living, loving, growing, building a life of my own.

I made something of myself.
Not because the world made space for me,
but because I created my own space when none existed.

The life I once feared I would never have
found me in the quiet moments,
in the slow breaths,
in the unexpected turns.

I didn’t just survive.
I became, and I won