Category: Disability
-
What I Wish People Knew About the PCA Waiver
Living Independently: The PCA Journey — Part Eight Our Beautiful Challenges — Marie W.O.W.C.P. Throughout this series, I’ve talked about what having a PCA means to me, learning to be my own boss, choosing the right people, building trust, setting boundaries, asking for help, and redefining independence. But there’s one more thing I want to…
-
Seven Things I Look for in a PCA
Living Independently: The PCA Journey — Part Four Our Beautiful Challenges — Marie W.O.W.C.P. Having a PCA is about much more than having someone come into my home and help me with certain tasks. This person becomes part of my everyday life. They may see me when I’m having a great day and when I’m…
-
The Challenge of Being My Own Boss
Living Independently: The PCA Journey — Part Three Our Beautiful Challenges — Marie W.O.W.C.P. Being part of a PCA Waiver program has given me something incredibly important: choice. I have the ability to choose the people who help me and have a say in how that help is provided. That freedom is a huge part…
-
The Benefits of Having a PCA- and the Benefits of Learning Without One
Living Independently: The PCA Journey — Part Two Our Beautiful Challenges — Marie W.O.W.C.P. When I first started living on my own, it was at the very beginning of the COVID-19 pandemic. Moving into my own apartment was already a huge step in my independence journey. But moving out during a pandemic made that experience…
-
What a PCA Really Means
Living Independently: The PCA Journey — Part One Our Beautiful Challenges — Marie W.O.W.C.P. When people hear the words Personal Care Assistant, or PCA, they may assume that having one means a person with a disability cannot be independent. For me, it means almost the exact opposite. Having a PCA doesn’t mean I’m not independent.…
-
The Love I Never Expected
Disability Pride Seres Our Beautiful Challenges — Marie When people think about disability, they often think about doctors, therapy, accessibility, or advocacy. What they don’t always think about is love. Yet love is something every person hopes to experience. For many years, I wasn’t sure what my future would look like. I wondered if someone…
-
Disability Is Not One Story
Disability Pride Series Our Beautiful Challenges — Marie One of the biggest misconceptions about disability is that people think there is only one disability experience. There isn’t. Every disability is different. Every person is different. Some people are born with disabilities. Others become disabled through illness, injury, or aging. Some disabilities are visible. Others are…
-
The Author of Me
Disability Pride Series Our Beautiful Challenges — Marie Every person has a story. The question is: who is holding the pen? For many years, I allowed fear, doubt, and other people’s opinions to write chapters of my life. Sometimes I believed the limits others placed on me. Sometimes I questioned my own dreams. Sometimes I…
-
They See What’s Different-Not What’s Possible
Disability Pride series Our Beautiful Challenges — Marie There have been so many moments in my life when people noticed my disability before they noticed me. They saw my walker before they saw my smile. They noticed my cerebral palsy before they noticed my personality. Sometimes they made up their minds about what I could…
-
Accessibility Is Not One Size Fit All
Disability Pride Series Our Beautiful Challenges — Marie One of the biggest lessons I’ve learned about disability is that accessibility is not one size fits all. For years, people with disabilities have fought for equal access. The ADA changed our country in incredible ways, making schools, businesses, transportation, and housing more accessible than ever before.…
