Category: Advocacy & Voice
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Cerebral Palsy From the Inside-Part 4
What Is Spastic Diplegia? Let Me Tell You From the Inside If you look up spastic diplegia, you will probably find a medical explanation telling you that it is a form of cerebral palsy that primarily affects the legs. That definition is important. But it doesn’t tell you what it feels like. I can. I…
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Cerebral Palsy From the Inside- Part 3
World Cerebral Palsy Day: More Than a Diagnosis Welcome to October 6 — World Cerebral Palsy Day. 💚 Today means a lot to me and to the cerebral palsy community because it gives us a day to show the world that we are more than just a disability. We are people like anyone else. I…
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Cerebral Palsy: Myths Vs. Facts
What I Wish More People Understood About Living With CP There are many myths about cerebral palsy. Some come from people simply not knowing much about the disability. Others come from assumptions people have made for generations about what someone with a disability can and cannot do. As someone who has lived with cerebral palsy…
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Cerebral Palsy From the Inside-Part 2
Cerebral Palsy From the Inside — Part 2 Before It Was Called Cerebral Palsy: The Story of Little’s Disease For my entire life, I have known my disability by two words: cerebral palsy. But while researching the history of CP for this October series, I discovered something I had never known before. Before cerebral palsy…
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The Extra Cost of Traveling with a Disability
The Extra Cost of Traveling With a Disability Getting There: Traveling With a Disability — September Series Going away for a weekend is supposed to be fun. But before I can enjoy the trip, there is something else I have to think about: How much is this weekend actually going to cost me? Living with…
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Is This Place Really Accessible? Getting There: Traveling With a Disability — September Series When I’m thinking about going somewhere new, one of the first things I have to ask myself is: Is this place disability friendly for me? I say for me because accessibility isn’t exactly the same for every person with a disability.…
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Traveling Has Changed as My Body Has Changed
Getting There: Traveling With a Disability — September Series I’ve never really been someone who travels a lot. But when I was younger and able to move around more freely on my own, traveling looked different for me. I remember taking the train into New York City with family and friends. We could get off…
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When Paratransit Isn’t an Option
Getting There: Traveling With a Disability — September Series Paratransit gives me an important way to get around and maintain my independence, but there are times when I can’t use it. Sometimes the rides are full. Sometimes I’m going somewhere outside of the service district. Sometimes I get a last-minute appointment and there isn’t enough…
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How Long Can I stay
When Transportation Controls the Clock Getting There: Traveling With a Disability — September Series When you depend on paratransit, deciding what time you’re going somewhere is only half of the planning. You also have to decide what time you’re coming home—and sometimes you have to make that decision before you’ve even left your house. When…
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When Your Ride Determines
Getting There: Traveling With a Disability — September Series Depending on paratransit—or sometimes depending on other people for a ride—can be very frustrating. I can’t always wake up one morning and say, “I think I’ll go shopping today,” and simply go. Even something like a doctor’s appointment requires planning. If I realize on the 15th…
